Helpful Links

Adoption | Advocacy and Legislation | Appearance | Camps and Activities | Disabilities | General Education | Emotional Support | Employment | Health and Prevention | Insurance | Medical | Scholarships | Specific Scholarships

* Link Request

 

Adoption

Child Welfare League of America
The organization has membership of more than 1,000 public and nonprofit agencies. It has resources for adoption and adoption funding on their Web site.

Joint Council on International Children's Services
This is the largest and oldest licensed nonprofit international-adoption organizations in the world. The Web site lists updates by country.

Lutheran Adoption Network
International and domestic adoptions for families of all faiths.

National Adoption Center
Hosts a list of waiting children from the nation's foster-care system and answers questions about the adoption process.

National Council for Adoption
NCFA is a research education, and advocacy organization. Its site answers many questions about adoption.

North American Council on Adoptable Children
NACAC is an organization committed to meeting the needs of waiting children and the families who adopt them. The Web site has very clearly written tips on adoption.

Back To Top

 

Advocacy and Legislation

Alliance for Childhood Cancer (ACC)
ACC represents more than 20 patient-advocate groups as well as professional medical and scientific organizations. The organization's stance on key legislative issues pertaining to childhood cancer is available through the Web site or by contacting the Alliance.

American Society of Clinical Oncology (ASCO)
ASCO informs survivors and their families about the latest cancer legislation. It also provides information about how to become a voice for change.

C-Change
C-Change is a national organization of cancer leaders from across all areas of the cancer community. The website has news relevant to cancer patients and survivors and opportunities to impact legislative change.

The Children's Cause for Cancer Advocacy
The Children's Cause brings the voices of childhood cancer survivors and their families to national policies which affect them. Updates on relevant policies and issues are available on the Web site

Cure Search
This site contains information on issues and legislation, elected officials and on how to become a more active advocate. Most information is also available in Spanish.

The Lance Armstrong Foundation-Livestrong
Provides links to Capital Hill and other advocacy efforts.

Back To Top

 

Appearance

2bMe
Look Good... Feel Better is a website for teens with information on dealing with issues related to appearance, social life and nutritional effects of cancer.

Look Good Feel Better
This program is designed to assist people of all ages in dealing with issues related to appearance, social life and the nutritional effects of cancer. The Web site is available in Spanish and English.

Back To Top

 

Camps and Activities

Big Sky Kids
A weeklong camp for cancer survivors ages 16-23. The camp is for Montana children but enrolls a limited number of out-of-state slots.

Camp Sunshine
Families of cancer patients may apply to attend a weeklong camp at no charge.

Planet Cancer
Events and research opportunities for cancer survivors.

Back To Top

 

Disabilities

ABLEDATA
This assistive-technology organization provides information about products and rehabilitation equipment.

Clearinghouse on Disability Information
The Clearinghouse provides information to people with disabilities or to anyone requesting it. Conducts research and provides documents in response to inquiries. Information provided includes areas of federal funding for disability-related programs.

Disability Rights Education & Defense Fund
The mission is to advance the civil and human rights of people with disabilities through legal advocacy, training, education and public-policy and legislative development.

Independent Living Research Utilization (ILRU)
Founded in 1975, ILRU has a long history of providing research, education and consultation in the areas of independent living, the Americans with Disabilities Act and home-and-community-based services and health issues for people with disabilities.

National Center for Learning Disabilities
Works to offer solutions and increase opportunities for all individuals with learning disabilities. Conducts educational programs, provides services, and recommends instructional activities to aid those with learning disabilities in achieving their full potential.

National Clearinghouse on Postsecondary Education for Individuals with Disabilities
It provides information about educational support services, policies, procedures, adaptations and opportunities at American campuses, career-technical schools and other postsecondary training entities.

National Library Service for the Blind and Physically Handicapped (NLS)
Through a national network of cooperating libraries, NLS administers a free library program of Braille and audio materials, circulated to eligible borrowers in the U.S. by postage-free mail.

National Rehabilitation Information Center
It provides direct, personal and high-quality information to the disability and rehabilitation community. NARIC's Web site offers online publications, searchable databases and timely reference and referral data.

Wrightslaw
Updated and accurate information on special education laws.

Back To Top

 

General Education

American Cancer Society (ACS)
ACS provides information on clinical trials, research updates, resources and preventative health. The 24-hour helpline answers questions about any cancer-related topic.

Cancer News
The Web site contains the latest articles on cancer, treatment and related areas.

Friends of Cancer Research
The organization raises awareness and provides public education on cancer research to accelerate the nation's progress toward cancer prevention and treatment.

National Coalition for Cancer Survivorship
Serves as a clearinghouse for information on services and material for survivors. The organization advocates for the rights and interests of cancer survivors. They offer a series of audio tapes, entitled "The Survivors Toolkit," to help people live with cancer.

Oncolink
Information and inspiration concerning the lifelong healthcare, emotional and social needs of cancer survivors.

People Living with Cancer
This is the patient-information Web site of the American Society of Clinical Oncology. It contains cancer research updates, medical information and coping ideas.

Planet Cancer
List of news and recent articles relevant to survivorship.

Back To Top

 

Emotional Support

American Cancer Society
A community of online survivors and their families with both chats and a message board. The community consists of adult and childhood cancer survivors.

Association of Cancer Online Resources
Provides free unmoderated support for cancer patients and their support people.

Cancer Care, Inc.
Cancercare has many online forums for people living with cancer and their partners. The forum is professionally moderated and one of the only sites which deal specifically with this topic

Grouploop
Grouploop has professionally mentored online support groups for educational and informational purposes, as well as a discussion board.

Imerman Angels
This group provides one-on-one cancer support: connecting cancer fighters, survivors and caregivers. Imerman Angels partners a person fighting cancer with someone who has beaten the same type of cancer.

Life with Cancer
This nonprofit cancer support and education center is part of Northern Virginia's Inova Health System. It is the dedicated to helping patients and their loved ones learn about and cope with cancer and its treatments.

Oncochat
Online peer support for cancer patients, friends and families.

Teens Living with Cancer
Teens Living with Cancer is a site where teens can connect with other teens as well as share inspirational stories and pictures.

The Ulman Fund for Young Adults
This is a connection site for survivors, parents and young adults with cancer. There is a mix of childhood cancer survivors and survivors diagnosed as a young adult. The topics are varied and you do not have to join to review the discussion format.

Back To Top

 

Employment

Americans with Disabilities Act (ADA)
Information on The Americans with Disabilities Act and current issues regarding disability rights.

Department of Labor/ FMLA
Information about the Family and Medical Leave Act and federal employment laws.

Equal Employment Opportunities Commission
Information about EEO Laws, how to file a discrimination charge and statistical information.

Job Accommodation Network
Provides free information on how employers can accommodate people with disabilities.

Project Action
Resources, training and technical assistance for those protected by the American Disabilities Act.

National Coalition for Cancer Survivorship
Provides a resource guide of employment rights, as well as support when dealing with the effects of cancer.

Back To Top

 

Health and Prevention

American Heart Association
This is a great resource for getting healthy and provides information on nutrition, physical activity, weight management, stress management and quitting smoking

American Institute for Cancer Research
This is the only Web site dedicated to diet and its relationship to cancer and cancer prevention.

American Lung Association
Tips on how and why to quit smoking.

Oncolink
This professional and well organized site contains the most recent diet information during and after treatment.

The Sun Protection Shop
This site has photographs, descriptions and warning signs of skin cancer.

Tobacco Free.org
This nonprofit group offers tips on quitting smoking.

Back To Top

 

Insurance

American Association of Health Plans
American Association of Health Plans provides links to many of the nation's primary health care plans as well as current information relating to health care policy including High Risk Pools.

www.healthcare.gov
This site provides information on insurance options, quality care and information on new healthcare reform.

Health Hippo
Health Hippo is a collection of policy and regulatory material related to health care. It is comprehensive, up to date and relevant to many issues involving childhood cancer.

Healthinsuranceinfo.net
Georgetown Policy Health Institute has written a wonderful guide for consumers on obtaining and maintaining insurance. The guide is viewable online and the site offers a state by state search for insurance guidelines.

National Association of Insurance Commissioners
Provides information and contacts on state health insurance programs.

National Coalition for Cancer Survivorship
Provides an informational book for adult survivors on health insurance. The book is also available in Spanish.

Patient Advocate Foundation
Patient Advocate Foundation is a national non-profit organization that offers patients free assistance in mediating with insurance companies to assure access to care, maintenance of employment and preservation of their financial stability. The site also has up to date insurance news.

Back To Top

 

Medical

The Center for Young Women's Health-Children's Hospital Boston
Reproductive questions and answers for cancer survivors. The guide is in Spanish and English and geared to answer the questions of female teenage cancer survivors.

Chemo Care
Scott Hamilton's chemotherapy site offering chemo information for cancer patients and their families, caregivers and friends. Outlines all you should know about chemotherapy and cancer treatment.

COG Institutions
Lists the hospitals which are members of the Clinical Oncology group in the United States.

Columbia-Integrative Therapies Program for Children with Cancer
This unique program is in the forefront of research on alternative medicine. The web site contains information on the relationship between diet and cancer and includes nutritious recipes. It also summarizes research information related to alternative medicines and diet.

ExploreBMT.org
ExploreBMT™ is an easy-to-search online tool that provides direct access to information about marrow and cord blood transplantation (also known as BMT). From diagnosis through survivorship, patients and their loved ones can use ExploreBMT to browse resources and services from respected patient organizations. 

fertileHOPE
This is a comprehensive website which deals with infertility issues for cancer survivors. The website compares various fertility methods and has up-to-date information on pre and post-treatment options.

National Cancer Institute
Houses the most up to date research on survivorship issues.

Stoppain.org
This site deals with fatigue issues and solutions.

The Cancer Journey
This site is organized by the Oncology Nurses Society. The site deals with six common side effects of cancer and treatment: fatigue, anorexia, pain, depression, neutropenia and cognitive dysfunction. It explains the causes and effects and "what to do" about the side effects.

United Healthcare Children's Foundation
This foundation accepts grant applications from families who need financial help to cover the cost of child medical services such as speech, physical or occupational therapy, prescriptions, and medical equipment such as wheelchairs, orthotics and hearing aids.

Back To Top

 

Scholarships

Andre Sobel River of Life Foundation
An award of $5,000 and honorable mentions of $1,000 are given to United States citizens who are survivors and under the age of 21. This is an essay competition.

Beyond the Cure Scholarship Program
Awards college scholarships to childhood cancer survivors who have demonstrated the ability to overcome the difficult challenges of cancer.

Carolyn's Compassionate Children
A college-scholarship committee selects recipients based on personal character, financial need, successful completion of high school and community service. Awards are $1,000 to be used for college education.  You may reach them at 203-550-1062 or email at help@change.org

FinAid-Guide to Financial Aid
Information about college scholarships, loans and other types of financial aid.

National Collegiate Cancer Foundation
$1,000 competitive awards are given based upon four criteria: financial need, quality of essay and recommendations, displaying a "Will Win" attitude, and overall story of cancer survivorship.

Patient Advocate Foundation
This site has criteria and a downloadable application for a $5,000 annual scholarship for cancer survivors.

The SAMFund
On-line inquiry about grants and scholarships. The SAMFund assist young adults transitioning into the adult world by providing financial assistance.

The Ulman Fund for Young Adults
This site has downloadable applications for two $1000 scholarships.

Back To Top

 

Specific Scholarships

Brain Tumor Foundation for Children, Inc.
Financial assistance and scholarships for survivors of pediatric brain tumor or spinal cord tumors. Applicants must be Georgia residents.

Cancer Survivor Fund
The site has the criteria and application on-line. The scholarship is for Texas residents.

Jay's World
The scholarship is awarded to a person who has been cured of cancer, in remission or able to attend college while in treatment and must be a resident of New York.  You may reach them at 1-516-671-7410, or send email to info2@jaysworld.org.

Jonathan Jackson Cancer Survivors Scholarship
Awarded to cancer survivors and current cancer patients from North Carolina by the Mount Airy Community Foundation.  You may reach them at The Mount Airy Community Foundation can be reached at 1-888-375-8117.

Michael A. Hunter Memorial Scholarship
Two $5,000 scholarships are awarded to leukemia patients or children of a non-surviving leukemia patient.

Pediatric Brain Tumor Foundation
The foundation offers scholarships for brain tumor survivors.

The Ryan Mullaly Second Chance Fund
Candidates must be United States citizens who were diagnosed with cancer between the ages of 13 and 20.

Stephen T. Marchello Scholarship Foundation
The Stephen T. Marchello Scholarship Foundation provides scholarships for post secondary education to Colorado high school survivors of childhood cancer.

Tim & Tom Gullikson Foundation
Scholarships for brain tumor patients/survivors and/or children of brain tumor patients/survivors.

Young Cancer Survivor Scholarship Program
Sponsored by the American Cancer Society. The information and application for the renewable $1000 scholarship for Michigan and Indiana residents is on this site.

Back To Top