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The Importance of a Late Effects Assessment
A late effects assessment can be created by a survivor or the caregiver of a survivor. Creating a late effects assessment will allow you to develop a risk assessment of potential medical and educational late effects specific to your diagnosis and treatment. Knowledge is power! The more information you know about your previous medical treatment and its late effects, the better prepared you will be to meet any challenges the future may bring. Two-thirds of survivors experience at least one late effect. As a result, this assessment was designed to answer questions about possible medical and educational late effects. The information for the late effects assessment was completed in collaboration with Robert Hayashi, MD- Associate Professor of Pediatrics, Division Hematology/Oncology, Washington University School of Medicine; Director of Hematology/Oncology St. Louis Children's Hospital and Daniel Armstrong, PhD.- Professor & Associate Chair, Pediatrics, Director-Mailman Center for Child Development.
Tips for Developing Your Late Effects Assessment
The more information you provide regarding your treatment, the more accurate your late effects assessment will be. In order to develop an assessment, you must know your diagnosis. When you enter your diagnosis, the assessment will list all of the drugs which are currently a part of the treatment protocol. If you know your radiation type, but do not know your radiation dosage, the late effects assessment will list late effects for all dosages. If you were treated more than 20 years ago and a drug is not listed, you will need to speak directly to your doctor about potential late effects.
Coming Soon
Information regarding late effects for surgery and bone marrow transplant will be added in the coming months. This information will be updated as more research into late effects is completed.
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